Help Sitemap Home Skip Navigation Contact Us Disability Statement

ferraris country house
 
 
Friday, 3rd September 2010

ME sufferer Jade's hope for a 'normal' life

Click on thumbnail to view image
Click on thumbnail to view image
Click on thumbnail to view image
Click on thumbnail to view image
Click on thumbnail to view image

Published Date: 06 May 2009
LEADING a normal life is something that 17-year-old Jade Hodgkinson knows very little about.
Simple things like going into town with her friends and learning to drive are activities the Pilling teenager has never had the chance to experience.
And preparing a holiday abroad with her family is often like planning a military operation.
After contracting glandular fever at the age of six, Jade never really returned to full health, and pure exhaustion, joint pains, sickness and insomnia have plagued her young years ever since.
Jade, who lives with her parents Barbara and Andrew, was diagnosed with Myalgic Encephalopathy, or ME as it is better known, shortly after beginning her first year at St Aidan's CE Secondary School, Preesall.
She explained: "I missed a lot of primary school. I was always really sick because I would pick up every bug, and I'd get really bad joint pains. I don't think the doctors believed me. I think they thought I was being bullied or I was school phobic.
"I'd had lots of blood tests, but they couldn't find anything wrong with me. Then two weeks into my first year at high school I just crashed. I was really ill and about six months later they diagnosed me with ME.
"I'd never heard of it before I was told I'd got it. And then they told me the ME had come from the glandular fever virus."
Jade's mum Barbara added: "We had just got used to her being ill. We were obviously very worried and kept getting her checked out, but there wasn't anything to go on. It never crossed our minds that she had ME.
Shattered
"In the summer holidays before she went to secondary school I noticed there was something quite wrong with her.
"She couldn't keep up with her friend because she was absolutely shattered, and she was always pale."
After two or three months Jade tried going back to school for one lesson a week, but she was unable cope, particularly with the bugs and viruses that circulated the school. Instead, she was referred to the Lancashire Education Medical Service (LEMS) in Lancaster, where she began attending one lesson a week.
Gradually, she built up her attendance, studying every morning, and managed to leave with three Bs, four As and one A* grade at GCSE.
LEMS offered Jade a more flexible alternative to full-time education, with smaller classes and shorter distances to walk to lessons, as well as an opportunity to socialise with other young people.
But the stress of taking her GCSEs meant she relapsed, this time ending up in a wheelchair.
With LEMS only offering education to GCSE level, Jade enrolled at Ripley St Thomas CE High School, Lancaster.
But by the end of December during her first term, she had relapsed again. She is still recovering now.
Jade said: "With ME, you need to pace yourself and build up activities slowly because if you do too much, you are right back at square one. It's very hard to predict.
"Studying for my A-levels was one thing I really thought I could do. I ignored how I was feeling because I wanted to go to a proper sixth form and meet people.
"But after I relapsed in December, I couldn't sit up, I couldn't walk and I was struggling to eat. I'd just lie there all day.
"ME is a lot more severe than people think. It's not just tiredness. Some people can't get out of bed, they can't stand light and noise and can't talk.
"It's really bad. People have even died from it. They get an infection, or they stop eating or drinking and their organs give up.
"My friend is being tube-fed and hasn't spoken for months."
Jade is a member of the Association of Young People with ME, and has met other young people with the illness at meetings in Liverpool. But she is keen to set up a group in the local area.
Diagnosed
She continued: "If someone's just been diagnosed with it, it can be really confusing. All these things are going on in your body that you have no control over, and there is no cure for it or medication.
"It's really hard for people my age to understand it. I can't go out with my friends and I've lost touch with everyone. It's really isolating.
"It upsets me because some people don't believe me. I'm not going to make something like this up. I want to go out and see my mates and go to school but I can't.
"LEMS was great for me because there were other people there with illnesses so they understood.
"I do feel like you get cut off when you're 16 - you don't just suddenly get better and you can't just suddenly get a job."
When Jade is well enough, she enjoys reading and writing and playing with her two dogs. But what she can do is very limited.
Barbara, who also looks after Jade's older brother Joe who suffers from cerebral palsy, explained: "Most mums complain about their daughters doing this, that and the other and they can't keep track of them. But with Jade it's the complete opposite.
"When Jade is very ill, we're sort of geared up for it already with Joe being in a wheelchair as well.
"We understand because we're used to looking after him, but it affects the whole family because we can't do anything or go anywhere.
"It can take a week for Jade to save up the energy to go out for a meal, and just recently, her joints went before we were due to go on holiday, so when we got there they were both in wheelchairs! We try to look on the funny side. You just have to get on with it."
Jade has always wanted to work with children, but because of the illnesses they can carry she has put that idea on hold for the time being.
She is keen to continue her studies and is considering returning to sixth form or going to Myerscough College.
She added: "I want to go back to sixth form but I don't know if it's a good idea. I don't know if I will be accepted, or if I will be able to do it.
"When I was younger I was a really bright, happy, bouncy person, but when I first got ill it just went completely.
"I know the ME will go eventually, but it's just hard to see the other side, the finishing point when I'll be fine so that I can start to plan what I want to do with my life."
* If you have ME and would like to contact Jade, you can email her at little-miss-giggles123@hotmail.co.uk

Page 1 of 1

  • Last Updated: 06 May 2009 10:03 AM
  • Source: n/a
  • Location: Garstang
 
 

Comment on this Story

 

In order to post comments you must Register or Sign In

 
 
 
 


Sister Newspapers:
Press Complaints Commission

This website and its associated newspaper adheres to the Press Complaints Commission’s Code of Practice. If you have a complaint about editorial content which relates to inaccuracy or intrusion, then contact the Editor by clicking here.

If you remain dissatisfied with the response provided then you can contact the PCC by clicking here.