Help find cure for Jonothon’s rare kidney disease

Steven Dunn, wife Susan and sons Jonothon, Nathan and Lawson.'The family are fundraising for Kidney Research after Jonothon was diagnosed with Iga Nephropathy
Steven Dunn, wife Susan and sons Jonothon, Nathan and Lawson.'The family are fundraising for Kidney Research after Jonothon was diagnosed with Iga Nephropathy

A family has launched a marathon fundraiser in a mission to help find a cure for their teenage son, who suffers from a rare kidney disease.

Jonothon Dunn, 13, from Claughton on Brock was diagnosed with IgA Nephropathy in 2013.

And the only signs the active Garstang Academy student had of something wrong was when he noticed a severe discolouration of his urine.

IgA Nephropathy causes scarring and inflammation within the kidney resulting in damage to the kidneys, limiting their function.

It can result in the need for dialysis and eventually a kidney transplant may be required.

Mum Susan Dewhurst, owner of Garstang’s salon Crimpers, said: “At the minute we don’t know what the future holds or exactly what damage is being done and that is why we are supporting Kidney Reasearch UK.

“After numerous rounds of tests and scans the decision was made to do a kidney biopsy in 2013.

“Doctors had been trying and trying to find out what was wrong but didn’t want to put a name to it.

“The biopsy showed it was Iga Nephropathy. At the minute we don’t know what the future holds or exactly what damage is being done and that is why we are supporting Kidney Reasearch UK.”

Iga Nephropathy causes scarring and inflammation within the kidney resulting in damage to the kidneys limiting their function. It can result in the need for dialysis and eventually a kidney transplant.

The family are now hoping to rise awareness and boost the funding for the charity after a new study into the understanding of the causes of Iga was launched and a clinical drug trial earlier this year.

Susan, husband Steven, Jonothan and brothers Lawson 11 and Nathan 10, will pull on their walking shoes for the seven-mile Glasgow Bridges walk on September 20.

But family and friends have also set up a series of fundraisers, with friends Ian Franks and Ian Hale gearing up for a 225-mile charity cycle from Northumberland to Newcastle.

And, on Saturday, September 12, Susan with friend Joanne Singleton is hosting a fashion show and open afternoon at Eastwood Farm, Stanzaker Hall Drive, Myerscough.

Later in the year Steven, alongside Joanne and Catherine will take on a sponsored climb up Ben Nevis. Proceeds from all the events will go towards the research.

Susan added: “As of to date there is no cure for this condition but certain medications have been shown to reduce the effects of the disease.

“At the moment Jonothan is taking medication and being closely monitored and is well at present.”

To donate or find out more check out our just giving page www.justgiving.com/steve-jo-catherine